Jan 29, 2020

Kobe Bryant and Me: Thoughts on Life and Death

I never knew Kobe Bryant even though we each lived in Pennsylvania at some point in our lives, less than 30 minutes and years apart --me for 60 years and Kobe for 18 years when, upon graduation, he went to his only team, the Los Angeles Lakers where he had a 20-year career. He was scouted as #1 in the country and played in the National Basketball Association (NBA). Among his many accomplishments, as a shooting guard, he won five NBA championships, was an 18-time All-Star, and got to be the best shooter ever after Wilt Chamberlain.

Unless you've been sequestered with jury duty or living under a rock, Kobe died Sunday along with his daughter and 7 others in a foggy and then fiery helicopter crash which killed them all. 

I watched the news reports Sunday and, after a while, stopped watching because the reporters occasionally brought up that incident where in 2003, Bryant was accused of sexual assault by a 19-year-old hotel employee. Shortly after, Bryant issued a public apology, with his wife by his side, but that action resulted in several endorsements which were cut off immediately including McDonalds and Nutella.

Then the devil sat on one shoulder and said, "Was that really necessary to bring that up considering all the good things he did, like the Kobe and Vanessa Bryant Family Foundation whose goals were helping young people in need of support, encouraging the development of physical, emotional, and social skills through sports, and assisting the homeless? Didn't the good things eventually overpower the bad? Can't we just move on?" 

But the angel who sat on the opposite shoulder said, "Can you really get over sexual assault?" The angel won.

It was 1 in the morning now on Monday. But I was really into it--the thinking, I mean. I sat on my comfortable sofa, for 3 hours, just hammering out what had happened. The Grammys were on Sunday as well in the Staples Center where the Lakers played. I started feeling overwhelmed.

I said to myself, if Kobe was so famous, and people tend to forget even the famous over time, little by little, what chance do I, a regular person, have to be remembered? I fell asleep somewhere in the middle but didn't lose direction one bit, returning to the internal discussion at hand.

Then around 2 on Monday, I thought of my father who was killed in his North Philadelphia store in 1971, and I didn't even think of him every day after awhile, except right around the holidays which were important to him because, other than working seven days a week to support his family, he liked fun. 

It was about 3:30 on Monday. The only thing was the country by Randy Travis called Three Wooden Crosses that pulled me out of whatever had taken over my mind. The song is  about four people--a farmer, a teacher, a preacher, and a hooker--going down to Mexico in search of various things. He was awarded the Academy of Country Music Award for Song of the Year. Listen to it for a moment.

https://www.youtube.com/watch?v=LT1sNrgnJZc


It's the refrain. 

I guess it’s not what you take when the you leave this world behind you.

It’s what you leave behind you when you go. 

And then I also knew. My father left his incredible work ethic, Kobe left his iconic basketball fame, and I guess people will remember me, too, albeit I don't know for what. 

I asked one of my sons the next day, "Will you miss me when I'm gone?"

He took a long time to answer and then he said, "You have your moments."

That's good enough for me, wiseass.

Jan 14, 2020

Knock, knock! I Was At Death's Door. And Then I Wasn't, aka The Issue of Turning Off the Life Support Machine Too Early

When I had my hemorrhagic stroke in 2009, my boys knew I had a zest for life from the way I lived it up to that point. I didn't have it written anywhere, but they just knew that I wouldn't want to die then at 60. Having put me in a medically-induced coma with a feeding tube and more wires that seemed to me, at the time, of going nowhere and everywhere, the doctors held little hope that I'd survive at all, and they thought surgery would finish me off completely, and only blood thinners would sustain me, if at all, in the life I now have.  

Reported
 by The Daily Telegraph, a London newspaper, in 2013, an American study suggested that one third of patients who suffer a specific form of stroke are having their life support machines switched off when they might recover.

The study 
from the University of Washington Stroke Centre in Seattle looked at two groups of patients who had suffered brain bleeds. They matched 78 patients whose life support was turned off to 78 patients that still had the machines on.

The researchers found that 38% of those who life support machines were utilized after some reasonable time period made a reasonable recovery, and kept progressing. (
About 10% of strokes annually are intracerebral hemorrhages (ICH), that is, brain bleeds). But only 4% of those whose life support machines were turned off made this comparable and early level of recovery, despite the fact that the two groups were compared evenly on stroke severity.


Dr. David Tirschwell, the main author of the study and co-director of the Stroke Centre, said, "Greater patience and less pessimism may be called for in making these life-and-death decisions. These results are yet another piece of evidence suggesting healthcare providers may be overly pessimistic in their assessments of these patients' prognoses, leading families to choose withdrawal of life support before the patient has had a chance to recover from their stroke."

Professor Steven Greenberg, chairman of the International Stroke Conference, and professor of neurology at Harvard Medical School, said, "The finding that fully a third of ICH patients in whom life support is withdrawn might otherwise survive is staggering."


A more recent study in 2019 entitled A Fate Worse Than Death: Prognostication of Devastating Brain Injury, by Pratt et al says, 
"[Doctors] should consider the modern literature describing prognosis for devastating brain injury and provide appropriate time for patient recovery and for discussions with the patient's surrogates. Surrogates wish to have a prognosis enumerated even when uncertainty exists. Respect for patient autonomy remains paramount."

Also in 2019, reported by Dr. Robert Truog, is w
hen someone encounters a traumatic brain injury [and stroke is one of them] and is unresponsive, how soon can doctors say if the person has a reasonable chance of recovery? New and stricter guidelines from the American Academy of Neurology prompts making the choice more difficult.

Truog writes that the practice now in most ICUs is to help families make a decision about whether to stop life support within the first 3 to 5 days after the injury. After 72 hours of observation, the physicians are likely confident in predicting a poor outcome as “extensively supported in the literature.” But is that enough time? 

Take me, for example. On life support, my medically-induced coma lasted over a week. And the doctor still wasn't confident of any projected outcomes close to a month later in the ICU. My sons would have been devastated if the doctor recommended stopping life support. I owe my thanks to my sons to counter any thoughts of stopping the machine. And to the doctor, of course, for listening to them.

Brain injury survivors or not, do it now! If you have any future brain injury, write down that you want to live, to enjoy all life has to offer you, for as long as you can. Write it down now to not rush the termination process, and put it on the refrigerator with a magnet. Or place it somewhere else that even a terrible searcher can find it. 

Three to five days is nowhere enough to predict outcomes. I am living proof. 

As Marcus Tullius Cicero, a contemporary of Caesar, said, "While there's life, there's hope." 

Amen to that, brother. 

Jan 5, 2020

Brain Fog: We All Get It Sooner or Later, But With Brain Injury, It's REALLY Noticeable

Some of my best friends call it a "senior moment" when they forget, let's say, the name of an actor or a specific date. Some others say it's a "brain fart" when we lose the thread of a conversation. But more commonly, you zone out more often when you have a brain injury. And a stroke is one type of a brain injury in addition to other kinds of brain injuries, like a concussion or auto accidents or assault. 

So welcome to the world of brain fog.

Let me say fatigue is different from brain fog. With fatigue, you "need," rather than "want," a nap. You lie down in the afternoon for a couple of hours and wake up feeling sort of refreshed. Until you're standing, you might wake up and feel that something interrupted your nap--the alarm, in my case. (I set the alarm if I feel fatigued just so I don't sleep too much that will interfere with sleeping at night. I've discovered that two hours before 1pm won't disrupt nighttime sleep. It's trial and error for you until you get it right). 

But brain fog differs. Though it may have overlapping symptoms with fatigue, it's more than just feeling tired. It’s when fuzzy thinking or the inability to feel sharp are present. You feel that you're not yourself in that moment, and slow thinking, confusion, difficulty focusing, forgetfulness, or a haziness are also part of brain fog.

The top five things to do, if you have ruled out medications or other conditions that bring on brain fog, is to examine the following in your life:

SLEEP


The Center Disease Control (and recently added Prevention) says more than 35 percent of US adults are getting insufficient sleep which the CDC defines as less than 7 hours. The sad part is almost 12 percent of Americans are getting less than five hours a night. If you lie down and take a short nap, even a 15-minute power nap, you probably won't compromise your sleeping at night. That's what I do. Here's what the rest of the country's doing, sleep-wise.  

Map displaying model-based prevalence of short sleep duration (<7 hours), by county in the United States, 2014. Data sources for development of model included CDC’s Behavioral Risk Factor Surveillance System (2014), the U.S. Census (2010), and the American Community Survey (2010-2014). County short sleep prevalence estimates ranged from 24.3% to 48.5%.

And here's something else that will guide you, coming from the National Sleep Foundation:

  • Newborns (0 – 3 months):  14 – 17 hours (with naps)
  • Infants (4 – 11 months):  12 – 15 hours (with naps)
  • Toddlers (1 – 2 years):  11 – 14 hours (with naps)
  • Preschoolers (3 – 5 years):  10 – 13 hours (with naps)
  • School-age (6 – 13 years):  9 – 11 hours
  • Teenagers (14 – 18 years):  8 – 10 hours
  • Young adults (18 – 25 years):  7 – 9 hours
  • Adults (26 – 64 years):  7 – 9 hours
  • Older adults (65+ years):  7 – 8 hour

CHANGE YOUR DIET TO INCLUDE BRAIN-BOOSTING FOODS

I'm almost vegan now although my son tells me you're either vegan or you're not. He says this because I eat fish, too. Pescatarian works, too, meaning vegetarians who eat fish as well.

Anyway, I've gone plant-based, meaning nothing that has a pulse--plus fish which does. (I can see my son rolling his eyes as he reads this post). My standard diet consists of broccoli, any kind of fruit, quinoa, nuts, and fish. For more information, write to me--hcwriter@gmail.com and I'll give you my complete diet. I feel better now, with brain fog occurring very rarely, twice a year at most!

DE-STRESS YOUR LIFE 

Harvard Medical School says, "Simple things, like a warm bath, listening to music, or spending time on a favorite hobby, can give you a much-needed break from the stressors in your life."

The Chopra Center says, "Recognizing the triggers to your stressful reactions is an important first step in managing your stress. True, it might be impossible to remove life’s stresses, but understanding the things that stress you out—and in what ways—is particularly helpful in solving the underlying problems." 

With brain injury, it's not too difficult to assess. It comes with the territory. So what do I do? Listen to country videos really loud via a headset. Or take a hot shower. Aah.

TUNE OUT WITH A MINDLESS ACTIVITY


If you don't know what qualifies for a mindless activity, you can spend $6 and buy this book on Amazon. Mazes and coloring books and gardening are included. But you have to be a Prime member. If not, the book will cost you more.
The other option is free. Putting away dishes from the dishwashers, folding the laundry, playing a video game, practicing tying my shoelaces one-handed, or reorganizing all the overflowing stuff on my desk that I do is all mindless. No charge for borrowing from my list!

As Odelya Gertel Kraybill, Ph.D., says in Psychology Today, "Survivors need to reconnect to spontaneity since it’s essential to the experience of  joy.  A powerful strategy for this is what I call intentional mindlessness. When we engage in mindless action, whether playing sport or other games, dancing, drawing, hiking, singing or playing music, or any other activity that absorbs us in a fun and playful way, our spontaneity increases."

EXERCISE

The Mayo Clinic offers this list and sums up all the good elements about exercise:
  • It pumps up your endorphins, the brain's feel-good neurotransmitters.
  • It's meditation in motion. You'll often find that you've forgotten the day's irritations and concentrated only on your body's movements.
  • It improves your mood. Regular exercise can increase self-confidence, it can relax you, and it can lower the symptoms associated with mild depression and anxiety [leading to brain fog]. Exercise can also improve your sleep.
The Mayo Clinic also reminds us that :
  • Do what you love. Virtually any form of exercise or movement can increase your fitness level while decreasing your stress. The most important thing is to pick an activity that you enjoy. Examples include walking, stair climbing, bicycling [I have a recumbant bike, thanks to my kids], yoga [there is armchair yoga, too, where you sit down while performing yoga], gardening, and swimming.
  • Pencil it in. Carving out some time to move every day helps you make your exercise program an ongoing priority.
So there you have it--five way to lessen brain fog, or eradicate it altogether. But you can't pick and choose. Try all five for a month. What do you have to lose? Yeah. Nothing.