5 Hilarious Thoughts about Campers and Stroke Survivors

J, a good friend, and I accomplished the 2-hour drive from my place to the campground in Ohio, stopping at Cabela's in West Virginia, the hunting, fishing, and outdoor gear emporium that also had bison burgers and deer meat custard if you wanted to take a break from shopping. (Only kidding about the custard). I bought a long-sleeved shirt because I didn't pack any and the air took on a chill even though, technically, it was still summer. Going to Cabela's put J even more in the mood for camping, but I just kept muttering that line to myself that Dorothy says in The Wizard of Oz: "There's no place like home."


J and I traveled the gravely, rutted road for one mile once we got off the highway and then we were there--Seneca Lake Resort--which was 300 lots filled with 300 trailers. This time was the first for me since my stroke 6 years ago that I agreed to go. It was a gargantuan step that took me out of my comfort zone of television, writing, and exercising in my own apartment. I was ready for the challenge.

As we pulled up to her trailer house, J had an addition--an attached, screened-in porch as do some of the people, and some people have ongoing projects--an extra bathroom in progress, a built-out kitchen soon to be completed, an almost expanded bedroom. And some people only have the original trailer. But all of the people enjoy camping. I mean, really enjoy camping.

I can't expect anybody who hasn't experienced a stroke to know, at exactly the point of our arrival, what dangers lie ahead. I hadn't fallen for over a year and yet I saw all that lay before me--a high step up to the screened porch, four  wooden steps to get into the trailer, throw rugs as my eye could visualize, a back deck with a high step, and 5 rocking, unstable recliners throughout the porch. But I had come this far and I wasn't going to renege. I just wasn't. I had to pee and it was a decision whether to go up those wooden steps or hold it in. (I held it in for a little while longer).

The weekend was great, but the challenges even more so. So I present the list: 5 Things You Have to Remember about Camping as a Stroke Survivor.

#1: Forget your fear of bugs. This is camping. The first time I saw a wasp in J's trailer, I thought life as I knew it was coming to an end. I'm allergic to anything "bee-like." Then my mother's words returned to me: "If you don't bother it, it won't bother you." My mother's words weren't at all true, but you have to forget about the flyin' and/or creepy crawlies when you go camping. You have to pretend that they're your friends. (Come to think of it, some of my friends have stung me, too, but I digress).

#2: Lose your fear of food. Sometimes, you just have to go with the flow. I am a picky eater. I eat the same things every day and only the combination varies: yogurt, bread, cheese, turkey, peas, bananas, and oatmeal. J served spicy-hot chili with meat one night, sausages with fried onions and peppers the next night. I ate sparingly, but not sparingly enough. No more information needed. 

And it was shocking  when J's husband, who has Southern roots, announced that dessert was boiled peanuts. I never had boiled peanuts and the thought of those little legumes jumping and sloshing around in scalding hot water made me sad. But after I tasted them, I was hooked and I didn't feel sorry for those peanuts anymore. I started thinking if boiled peanuts were offered on Amazon, the website where I should own stock in the company, I'd order them.

#3: Don't ever say, "Eeeew." We went fishing, just the three of us. Their son stayed with a friend and they were catching bugs to put into the ant farm that I bought him as a gift (also known as a child's self-created apocalypse. Beetles and ants? You can imagine). Anyway, I was sitting on the rocking boat and I was pretending that I wasn't sea sick, when all of a sudden, J's husband caught a big one--a flapping, pissed-off bass that was putting up a pretty good fight. 

After reeling it in, J said, "Here, you hold it by the line while I take a picture." There were a lot of things wrong with that picture, but at the top of the list is the fact that the fish, now going bonkers, was spraying lake water on my body. I was a little OCD now from my stroke, and once we returned from fishing, I couldn't take a shower after because the trailer's tub is too high, but I promised myself that I wouldn't say the "E" word even once, so I let the fish have his agony while she snapped a few pics. But that doesn't prevent me from saying it now, safely back in the comfort zone. EEEEEEEEW!

#4: Do what the other campers do. Mostly everybody had a golf cart on their property for visiting other campers or just snooping at the other 299 trailers to see what they had going on. I saw them going by, golf cart after golf cart, many of them driven by young kids. The park didn't care as long as your foot touched the pedal. J had a golf cart, too, and said she wanted to give me a tour of the park-like setting. The golf cart's speeds were "off" and "beyond-your-wildest-dreams-fast, aka "Indy 500-car fast." There were no seat belts, so her husband used a spare garden hose to keep me from falling out. That gesture really wasn't necessary because I wasn't going anywhere. Seeing the setup beforehand, I grabbed tight to the bar right behind J's head, and the garden hose belt fell off 50 feet from the trailer when we started. 

We were off! I kept me eyes open in a wide-eyed stare, waiting for my eventual death, going around sharp curves and hard bumps in the road, but after a few minutes, I enjoyed it. My hair was shot to shit because the golf cart didn't have a windshield either. But the amazing thing about all the campers we passed on that mini road trip is that they didn't care what I looked like. If you ever want to feel accepted, go camping. The reason? Everybody in the camp looks like shit, too.

#5: Relaxation is the key. For 3 days (except for the aforementioned), I was totally relaxed. I lay in the sun thinking only good thoughts. I sat in the recliner and saw, through the screened-in porch, scores of cardinals, hummingbirds, and yellow finches traveling to and fro to the 5 bird feeders, hanging from strings to keep them out of the raccoons' reach. I reclined by the fire pit and was thankful for J sharing this experience with me and the lily pads she pointed out on the lake, for J's husband who was all about safety, and J's nine-year-old son for offering to help me to traverse the flagstone walkway and showing me the frogs he caught (and let go). 

Soon as I got home, it was back to the same old, same old, but for 98% of the 3 days I was there, I had found nirvana.

Depression and Stroke, aka If It Comes to Depression, You Know What Hell Feels Like

I think of depression as an inverse proportion formula--the longer you live with the stroke, the shorter you think about depression. It was that way with me, but it isn't that way with everybody.  "P" says on Facebook, "I'm still depressed 20 years later. How come you're not?"

Well, "P," the last time I thought about depression was 2 days ago. The time before that? I don't know, but it wasn't much in the last 2 years. So what prompted my depressing thought? I'll tell you.

My personal assistant said, "Do you have to wear that brace forever?" But that comment, even though it was horribly depressing, didn't give me depression. It just gave me, for a fleeting moment, sad thoughts about all the things I couldn't do anymore, like tennis, square dance, run. But I didn't dwell too long on that thought--maybe 5 minutes at most--because what's the alternative?

Plus, depression comes in many forms:

Major Depression (5 or more symptoms for 2 weeks or longer--loss of interest in your activities, sleep problems, weight fluctuations, energy level changes, feelings of guilt, trouble concentrating, thoughts of suicide)

Dysthymia (2% of people have it for a year which can be indicated by low mood  sadness, trouble concentrating, fatigue, and changes in sleep habits and/or appetite)

Bipolar Disorder (patterns of excessive highs and lows)

Seasonal Affective Disorder also known as SAD (most often during winter when the days grow shorter and less sunlight is available)

Psychotic Depression (seeing or hearing things that aren't there, incorrectly believing that others are trying to harm you)

Postpartum Depression (comes right after childbirth, lasting a week or even months)

Premenstrual Dysphoric Disorder (once-a month mood swings, trouble concentrating, irritability)

'Situational' Depression (death, divorce, financial woes)

Atypical Depression (increased appetite, sleeping more than usual, arms and legs heaviness, overly sensitive to criticism, all of which a positive event can temporarily improve mood)

If you recognize depression in yourself or others, and you or others want to get help, there is help available. (The operative word is want). Talk therapy and drugs help, but only if you want it. I can't stress "the want" enough.

Three of many studies about depression that caught my eye appeared in the Journal of the American Heart Association:

1. The Relationship Between Functional Disability and Depressive Mood in Japanese Older Adult Inpatients (Japan)

The outcome: The results reveal that factor analysis of the Geriatric Depression Scale will help in understanding the etiology of depressive mood, thereby contributing to better therapeutic approaches. 

2. Frequency of Depression After Stroke (Australia)
The outcome: "Depression is common among stroke patients, with the risks of occurrence being similar for the early, medium, and late stages of stroke recovery. There is a pressing need for further research to improve clinical practice in this area of stroke care." 

3. Depression After Stroke (England)

The outcome: "Depression was common among stroke survivors and among their caregivers at 3 months, and its rate did not decrease at 1-year follow-up. The lower depression rate in districts with active programs compared to those without supports the idea that outpatient rehabilitation and support provided by [health organizational support] may be an effective way of decreasing the rate of depression after stroke." 

So they're all saying the same thing: they haven't a clue about depression's targets and hopeful that scales or research or rates can work to deter or eliminate depression.

So those findings helped me to generate ideas.

1. Rehab therapists, on the whole, don't give reasons why you're batting the foam ball, why you're putting round pegs in round holes, why you're standing up and sitting down with 10 reps and 2 sets.

If they took time to explain why you're doing those things, maybe stroke survivors would realize the importance, not just silly games to waste time, to try and decrease or even eliminate depression.  

Sometimes, therapists don't listen. I heard them talking. They're more concerned with the schedule (oh, God, I have 3 more patients to see) and the order of the room (I must return the ball to the basket) than they are with explanations (the exercise I am asking you to do will improve your balance, endurance, your future life!)

2. Our no-nothing Congress should pass a law (yeah, that's gonna happen) that there should be a psychiatrist or psychologist or a licensed social worker in those first weeks or months in the rehab center after the stroke to avoid depression and regularly see patients and scare them "straight" into rehabbing all they can, by telling them "do you want to have a hand and foot that are dead?" or "you have to try and pronounce each syllable. TRY!"

For me, it would have made all the difference from keeping me in Hell, aka depression, for those first years. Then I went to talk therapy. Fortunately, I was only a visitor in Hell and I got out. But I wanted to escape the torments of depression. 

Remember what I said earlier? I can't stress "the want" enough.