Jun 19, 2019

Me Talking Exclusively About Me: The Tales of a Stroke Patient and More

This post is very brief, but it needs to be said. I'm exhausted from people asking me all the time why I write this blog which is going on 10 years. I write to inspire. I write to educate. Most of all, I write to give people hope, and me as well as a reminder, that it gets better as the years pass, especially if you're positive. Why almost 650,000 readers? Done. Now you know.

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My blog's readers, almost 650,000 currently, a typical week later....


And this review by Judy Herrmann, among many, mostly 5 star, of my book, The Tales of a Stroke Patient, available from most  online sellers like Amazon (http://www.amazom.com) and Barnes and Noble (http://www.bn.com). If you don't mind a used book, check out http://www.biblio.com.


Strokes happen suddenly; one moment you are healthy and the next, poof, your brain is messed up and your body doesn't work the same any more. Joyce Hoffman shared the personal experience of her stroke, first as a blog, then as this book. She wrote partly to help other people. 

As a stroke survivor myself, I have been reading anything I can find about strokes. It is not easy to find stories like this about people's personal experiences. But emotionally, it helps my recovery to read about other people's recoveries. Reading Joyce's book was like having many long conversations over time with Joyce about her stroke recovery. Joyce tells it like she sees it, and this makes her book all that more enjoyable, like sitting down with one of your good friends over lunch, listening to what they have been up to. 

The various speech (covering cognitive, swallowing and actual speech), occupational (which includes activities of daily living and upper body recovery) and physical therapists treated Joyce well and helped her in her recovery. The CNA's (Certified Nursing Assistants) were another story. Patients sometimes had to wait inordinately long times after pressing the call button only to be faced with a rude CNA. I won't tell you any more about Joyce's experiences, but there are not pleasant to read. 

Lastly, Joyce has several thought provoking topics such as bibs, and the ease of using wheelchairs in stores. I recommend this book for anyone who has had a stroke as well as their friends and relatives. 

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Thanks, Judy. You nailed it!

One more thing: Anuj Agarwal who is the founder of Feedspot awarded me and 24 others this honor:

Thank you, Anuj, for this great symbol of what all the awarded stroke survivors are trying to do--bring hope, awareness, and peace to those afflicted. 

Jun 16, 2019

The Story Behind Millie, the Caregiver: Did I Break Her? Or Did She Break Herself?

So I should have known, as a stroke survivor, from the first day I met Millie--when I fell off the slippery cafeteria chair in IKEA and she didn't stand up and rescue me from the floor and continued eating her strawberry salad when other people came over to restore my position on the chair--that there was something wrong with her. But I ignored it, lying to myself, just thinking that she was in shock.

Looking back, I came to realize that everything was about Millie. If I have to give her a name, she was a DIVA! But to be fair, I take 10% of the blame. The rest, the 90%, goes all to Millie.

The first few weeks, other than falling off the IKEA chair, were most pleasant yet businesslike. I wasn't used to that efficient style because my previous caregivers in Pittsburgh (I had three) told me everything about their family interactions and their social life. Often, they would pick me up and take me to their family's parties. But Millie had boundaries.

"I don't like doing more than one thing at a time."

"I have other clients that follow you, so I won't plunge the toilet if need be."

"This apartment needs deep cleaning. I know somebody who could do the job."

And on and on, more and more, but that's what she was hired for--multitasking, plunging, cleaning.

She should have quit the job rather than add boundary upon boundary.

I take 10% of the blame because once she decided to shirk her duties, I instigated her, just to see how she would react. It became a game, albeit a stupid one, called, "How Can I Piss Off Millie Today."

"Millie," I would ask, "while you continue to cut the fruit, could you tie my shoelace first?" knowing that she didn't like to be interrupted.

"You need that show tied right now?" she asked defiantly. 

I didn't respond knowing that no response usually makes the point stronger. She tied my shoe and sighed audibly with a frown on her face. (I know that frown. It's the same scorn I used on my mother-in-law when she did things unsolicited, like clean my bedroom without asking even though it was more like snooping).

Anyway, when I was in the middle of a call on my cell to the doctor's office, and Millie had already reached our destination, she'd advise me to hang up and call back later. I just knew she was approaching the final straw.

I paid her for three hours even though she just gave me two and a half after a while, complaining about the lack of parking spots. She had a 3-hour minimum.

"How about this idea?" I said to her. "Why don't you leave a half hour earlier from your house because then you would actually put in the hours I am paying you for."

"Wouldn't work," she responded, and then busied herself out of earshot with another task, one task at a time.

Then came the last straw. She gathered up a small clump of dust from somewhere, and said, "You should tell whoever's here to clean more thoroughly." Unbeknownst to me, sent a picture of that dust clump to my son who, regardless of how concerned he is about my well being, knows that I make my own decisions on everything and really knows I am not bothered by that little clump of dust. He thought it was silly, too.

(Millie was referring to Lynn, but didn't say her name because Lynn and I are friends now rather than employer/employee exclusively and I interviewed them both on the same day. I would have taken Lynn over Millie, but Lynn couldn't work every day, and it's Millie's job anyway to clean up little clumps of dust. She was the primary caregiver! Forgive me for that huge rant, but it had to be said).

I finally knew. She had to go. I'm known to have a long fuse, but I have limits, too. On a recent Monday, I let her do the tasks and we took a break two hours in.

"Millie, this isn't working out," and then paused for her to object. But rather than argue, she packed her things in a hurry and left without saying a word. I was amazed at how easy that was to let her go.

I didn't pay her for the three hours (that was only two), so I put the check in the mail along with a timesheet required by the insurance company and a self-addressed stamped envelope with my name on the front so I could get the timesheet back. No reply. After a couple of weeks, I sent another check thinking it was lost somehow in transit and, once more, the timesheet and a self-addressed stamped envelope. Again, no reply.

But this time, a few days after my second mailing, she cashed the check, only one of the two I sent, probably destroying the other. (I put a stop on that check anyway). And she never returned the timesheet.

I came to realize two things: 1) Millie should have quit much earlier if she was so unhappy, and 2) there were more Millies out there who actually enjoy being caregivers. Lynn comes every Wednesday now and I have another lovely caregiver who do the tasks I assign them, with a smile, always! Good for them, good for me.