Aug 2, 2019

Stroke Survivors: Too Much Body Weight More Than Likely Means Failed Rehab Expectations at Some Point


Do you yo-yo with your weight after stroke? Many stroke survivors, sooner or later, are bored of being homebodies and venture out with a caregiver, or not, to find some excitement at the pharmacy or grocery store. I ventured out, albeit not alone, to even find some thrill at the doctor's office. But alas, there weren't any thrills anywhere and I went home and ate out of boredom, the one thing I shouldn't have done.

Now I follow My Fitness Pal app downloaded on the phone, for the past 90 days, once again, to take off those unsightly pounds. I lost 19 pounds so far, with a "decade and a half" (15 lbs) more to go, but I am at a plateau, not being able to really exercise like I used to in those sweat-generating sessions. I bought an exercise bike that my son and his girlfriend are supposed to put together after I sell the chair and cabinet that's blocking the space. But I digress.

Anyway, until then, when I finally have the bike assembled, the Fitness Pal diet goes on, and whether you like reality or not, it's a fact that stroke and excess body fat are a bad combination.

I can tell when I am heavier. I have a harder time standing up from the low couch, usually achieving it by the second or third time. When I was thinner, the first time. Thus, you may get to a point in Rehab in the Overweight range or higher where, try as you might, you just can't do the exercises fully, getting breathless or overly fatigued, or both as I did.

To get whether you roughly (the operative word) weigh too much, Johnny Wright, former Head of Outreach at ReNew Bariatrics, shared this information with me. (See the chart below).




In order to determine your Body Mass Index, which is the popular way to tell if you are overweight:

Take how much you weigh and divide it by your height in inches times 2. This feature is called squaring, in this case your height, and multiply the total by 703.



Example: If I weighed 140 lbs. and divided it by my inches which is 65 inches times 2, would read:

140      =  .033         .033 x 703 = 23.2    which makes me in the Normal Weight range.
65x65

My height is the same, my weight a little bit higher, so the Normal Weight range is what I'm seeking.

But there are exceptions, so take these numbers in perspective:

If you are a body builder, muscle is more dense than fat and is far better and healthier than body fat.

If you have heart disease, diabetes, or any disorder in your gene pool that is listed in the chart, it may be better if you try for the Normal Weight range.

If you are at the age of 60 or above, your metabolism slows down as you age, so take that into account.

IF YOUR DOCTOR TELLS YOU DIFFERENTLY, FOLLOW THE DOCTOR'S PLANS.

If you're already in the Normal Weight range or lower, congratulations. And if you're trying to get into the Normal Weight range, kudos for trying.


Jul 27, 2019

It Is What It Is: Stroke Pain Gets Some Relief From CBD! aka You Don't Have to Smoke Weed to Achieve Comfort in Most Cases


Stay with me here. Long albeit necessary introduction ahead regarding the first source in English of "It is what it is." The earliest known written reference dates back to 1949 when the phrase appeared in a column written by J. E. Lawrence in the Nebraska State Journal:
"New land is harsh, and vigorous, and sturdy. It scorns evidence of weakness. There is nothing of sham or hypocrisy in it. It is what it is, without an apology."
It is what it is. I use that expression, too, a lot, regarding my  stroke pain. I always have a mild sensation, rarely severe, in my affected leg, so much so that now I don't even regard it as pain, just an annoying tingling. It's become the way it is (see, again), at times forgetting about it. And now I discovered relief. Welcome to the world of Cannabidiol!

I attribute the following information to Harvard Medical School:

Cannabidiol (CBD) has been recently covered in the media, so what exactly is CBD? 
CBD stands for cannabidiol, and it is the second most prevalent of the active ingredients of cannabis (marijuana). While CBD is an essential component of medical marijuana, it is gotten directly from the hemp plant, which is directly related to the marijuana plant. While CBD is a component of marijuana (one of hundreds), by itself it does not cause a “high.” 

According to a report from the World Health Organization, “In humans, CBD exhibits no effects indicative of any abuse or dependence potential. To date, there is no evidence of public health-related problems associated with the use of pure CBD.” 

CBD is easily available in most parts of the United States, though its exact "legal" status is in limbo. All 50 states have laws legalizing CBD with varying degrees of restriction, and while the federal government still considers CBD in the same class as marijuana, it doesn’t make a habit to enforce against it. In December 2015, the FDA eased the regulatory requirements to allow researchers to conduct CBD trials. 

Forbes says once associated into the arena of Controlled Substances Act for nearly 50 years alongside heroin, LSD, and marijuana (or cannabis), the non-psychoactive relative of marijuana--CBD--cannot get you stoned like weed, and it is defined by the federal government as containing not more than 0.3 percent THC, the "getting high" part of cannabis. 
In numerous studies, CBD was able to reduce the number of child and adult seizures, in some cases stopping them totally. Recently, the FDA approved the first time ever, cannabis-derived medicine for these conditions, Epidiolex, which contains CBD.















CBD relieves anxiety, insomnia, (with both falling asleep and staying asleep), and pain, and a variety of other conditions seen in the chart above.
The side effects of CBD include nausea, fatigue, and irritability, and can increase the level in your blood of the blood thinner Coumadin, resulting in bleeding. 

A significant safety concern with CBD is that it is primarily sold as a supplement, and the FDA does not regulate the safety and purity of supplements. However, it can also be added to a number of non-edibles and used topically, like balms and lotions. 

The researchers need more data, but CBD may be proven an option for managing anxiety, insomnia, pain, and other ailments. It's true that CBD is currently mostly available as an unregulated supplement, and it's difficult to know exactly what you are getting. If you decide to try CBD, talk with your doctor to make sure it won’t have an adverse effect on other medications you are taking.
Natural Stacks says that CBD comes in many forms:

Products containing CBD oil are widely available, even on Amazon. You can find it, for example, in capsules, creams, or gummies.

As mentioned before, anyone can make a CBD supplement without formal regulation or testing. Even though the cannabis industry is thriving, until there is official regulation and control of CBD, you should do your research to have an absolutely clear knowledge of what you’re buying. 
Ask questions to the vendor:
  • Is this a full-spectrum or pure CBD oil, an extract, or wax?
  • What is the actual quantity of CBD in the product?
  • Can you give me the name of the company that produced this product?
  • Do you have any documents to show that this product is effective and safe?
  • Do you offer exchanges or refunds if I feel that the product is not helping me?  
A trusted company should be able to produce a Certificate of Authenticity on the label, provided by an accredited laboratory.
There's also CBD wax which comes in different forms, and may be called shatter, live resin, crumble, or budder. It’s manufactured by treating the extract so that it becomes crystallized.  
Dabbing CBD wax is exceptionally potent and can provide instant relief from problems, but you should use it cautiously as it's concentrated. 

I can't ingest (take by mouth) CBD because I'm on the blood thinner Coumadin, but I've used a CBD lotion locally from Amazon called Hemp Cream 1000 which helps my leg temporarily from that awful tingling. Again, check with your doctor before using any CBD products. I did, and now constant relief! 

Jul 8, 2019

Can Brain-Injured People Ever Achieve Prolonged Happiness, aka MY List Doesn't Have to Be YOUR List

People who tell you that they experience complete happiness every hour of every day are delusional. For example: If you sent someone a virus warning by forwarding the email so they could see what it looked like and forgot to remove the infected attachment, or if some barista screwed up the order and you got espresso--which you drank--instead of decaffeinated, or if you put on mismatched socks because it was early in the morning and still dark outside, and you had to endure working like that in the office all day, there's a "shit" or "wtf" or something like it in there somewhere, even if you don't say it out loud.

Come on. That's life, and it gets tough sometimes. It's not supposed to be perfect. But what about the brain injured, including stroke, who have more good reasons for having a sub-par day. What about them

Without further ado, here is my list for achieving happiness  as a stroke survivor, in no particular order because they each make me smile--and yes, for a prolonged while. 
1. Listening to or playing music  


Debbie Hampton, the creator of the site The Best Brain Possible (https://www.thebestbrainpossible.com), wrote, "Research shows that listening to music can reduce anxiety, depression, blood pressure, and pain as well as improve sleep quality, mood, memory, increase some cognitive functions, enhance learning and ward off the effects of brain aging." She continued to say that music stimulates your whole brain because music is structural, mathematical, and architectural based on connections between one note and the next. 


[Just a sidenote: I am now in a band now and I feel one of the happiest moments ever while I am playing the keyboard, (even with only the left hand).]


2. Having a good hair day

If you can remember, though it was long, long ago, there weren't any blow dryers or Moroccan oil to tame one's hair. As a result of that time, I sometimes was known as frizzy headed. But now, with blow dryer and oil in hand, I can even stand in the drizzle and my hair, though it would change into gentle curls, wouldn't get frizzy. So...good hair day ranks in the top 10.


3. Getting "Shares" on Facebook

To think that I've said something that matters to other people gives me joy. I haven't counted, but the posts on my blog, The Tales of a Stroke Patient and More, occasionally get shared which means the posts are shared with their friends, which means those people who shared my posts thought it important enough for all of their friends to observe.  



4. Trying a new meal 

I like try new to try new recipes at home and that makes me happy if it meets the requirements. I can't use a knife with only one hand so the recipe has to contain bite-sized pieces that I could munch on or sandwiches that I can hold. For example, my assistant bakes chicken (I don't like the deli stuff) and, when it's finished, slices it up with a teaspoon of barbecue sauce drizzled over the chicken, and puts it on low carb wheat bread. The remainder she freezes, wrapping them individually in tin foil. Ask me in the Comments section for other recipes if you can't use a knife.

5. Walking faster with my quad cane
It's a difficult line to draw. I do not want to jeopardize safety by walking too fast, yet I walk too slow for fear of going too fast. So how fast is too fast? 

In the study Determinants of Walking Function After Stroke: Differences by Deficit Severity," Dr. Shawnna L. Patterson et al found that "balance, cardiovascular fitness, and paretic [having paralysis] leg strength are all important factors involved in determining a person’s long and short-distance walking function after stroke. Balance is more important in those with more severe gait deficits, whereas cardiovascular fitness plays a greater role in those with milder deficits." 

I want both--balance and cardiovascular. So trial and error will not be looked by me as a drudge but rather as an adventure in walking.



6. Watching human-like animal behavior 

I'm healthily addicted--and happy--when I see ordinary animals doing extraordinary things. In the image above, Tori, the Indonesian Orangutan, goes to her zoo keepers when she has a tantrum if she doesn’t get her daily fix! 

And then there's Abe, my son's cat, who eats corn on the cob if my son holds the cob on both ends. Munch, munch, goes Abe without pausing. Hilarious!



7. Finishing sentences using the right words

It brings me great happiness when I can finish a sentence on my own! I have aphasia, a communication disorder that in my case is finding the right word, usually the last word. "It's so, er, um," I would say in the beginning of the disorder post-stroke, struggling to finish the sentence. It's improving, but I'm working tediously to fix it by looking up every word obsessively that's new to me or getting a different slant on a word already known. It's a mental workout. I tell people who want to finish my sentence in a nice way to fuck off. And to think that I used to speak for a living!



8. Taking a long shower

I love a warm shower to the point of smiling. Dr. David Greuner, surgical director of NYC Surgical Associates, says, "Generally speaking, the ideal shower is a warm, five to ten minute shower. Hot showers are great when you’re sick to help moisturize the nasal passages and help decongest you." And most people know that a hot shower can also ease aching in sore muscles (which I always have). 



9. Making peace of mind my priority

When my sons are happy and healthy simultaneously, when I'm not falling, when I have money left at the end of the month, when my frozen-to-microwave chicken sandwiches didn't run out before a marketing trip, when all my plants are bug free, I have peace of mind. And that make me happy.



10. Joining hands around the globe for world peace

Not gonna happen tomorrow, or next week either. But when it does, you'll see me smiling broadly. 

Write about your list in the Comments section and I'll feature it in the blog!

Or maybe you don't have any list. In that case, please get on it. In my opinion, things that make you happy are to be known and celebrated.