Stroke Survivors: Stay Away--Mayhem, Mishaps, and Murder on Black Friday

I usually write a post about Black Friday this time of year, the marked up and then seemingly discounted products that everyone goes searching for in the malls and stand-alone stores. People are trampled to death, with their bodies stepped on repeatedly that happens in the prodigious crowd. The workers lose any semblance of their "thanksgiving" and the shopping frenzy makes the greedy buyers do what they wouldn't do at any other time of year--mayhem, mishaps, and murder. 

Look at this chart from The Hustle dating from 2006 to 2018:

We don't have this year's numbers, but I bet it follows the same trend, with Walmart having the most notorious amounts of injuries and deaths. 

Cyber Monday doesn't have those problems. This year, more holiday shopping will be done online than in the store. The injury and death count for Cyber Monday? Zero. Fuck Jeff Bezos who doesn't pay a decent living wage to his workers, but as a handicapped person, I'm a hypocritical fan of Amazon Prime.  

Black Friday is no place for the disabled. If you've already gone to stand in those inordinate lines and came out alive and are disabled, good for you. You got lucky. 

Hey! I've got an idea. If you like confrontation which Black Friday already is, why don't you go to a protest instead. Stand up for the Green New Deal, climate change, free college, Medicare for all, healthy drinking water, and there's always somebody who thinks the opposite. At least, if you obey the cops and stay on your side of the "line," everybody wins. 

Warfarin: A Blood Thinner and Rat Poison Shouldn't Be in the Same Sentence

I got a brain bleed 13 years ago and I wasn't supposed to live. I had Protein S Deficiency that gave me blood clots and didn't know it for over half my lifetime until I was diagnosed with a hemorrhagic stroke. The neurosurgeon didn't operate because the chance that I would have survived the operation was zero, having thick and plentiful clots in every extremity. Instead, I was put on Warfarin, another name for Coumadin, and here I am, a decade later.  

A little background first. The only restrictions with Warfarin are too much Vitamin K intake, like lots of kale, broccoli, or leafy green vegetables. The most important thing with Warfarin is to stay consistent. By staying consistent, the doctor knows how much Warfarin to give me through a prothrombin time (PT), a test used to detect a bleeding or clotting disorder and the international normalized ratio (INR) used to monitor how well the blood-thinning medication called anticoagulant is working. I take blood tests frequently and I am stable. 

So how could Warfarin, the wonder drug, and Warfarin, the rodent poison, be related? 

A long time ago, in the late 1920s, the cattle and sheep in North America and Canada were dying from fatal bleeding, blamed on mouldy silage, (a method used to maintain the pasture for cows and sheep to eat later and stored in the silos when natural pasture isn't beneficial, like in the dry season).

The cattle and sheep had grazed on sweet clover, a kind of hay. Hemorrhaging occurred usually when the climate was damp and the hay had become moldy. Tough times in the 1920s meant that farmers could not afford a replacement, so the hemorrhagic disease became known as "sweet clover disease."

There were only 2 solutions, according to veterinary surgeons: destroying the moldy hay and having a replacement or transfusing fresh blood into the bleeding animals which was called "plasma prothrombin defect."  

But everything comes down to money, and even though the farmers were told not to feed the moldy hay, they did not follow the recommendation, and sweet clover disease remained, even a decade later. 

By 1940, Karl Link, a biochemist, and his colleagues came upon a natural substance called coumarin, better known as dicoumarol from the sweet clover and was used as an anticoagulant, albeit an iffy one. The work was fully financed by the Wisconsin Alumni Research Foundation (WARF), who were given the patent for dicoumarol in 1941. 

But in 1945, knowing that dicoumarol was a lengthy process in thinning the blood, Link considered using the coumarin derivative Warfarin as a rodenticide which had the reverse effect--slow bleeding until the little suckers bit the dust. Bleeding in who-cares-about-rodents fit the bill, and the compound was named Warfarin after the funding agency. It was marketed in 1948 as a rodenticide, and warfarin still exists today as both a rodent killer and a blood thinner. 

In 1954, Warfarin became known as the go-to anticoagulant under the trade name Coumadin, and was approved for use in humans and, of course, rodents. But in humans, when there was still too much bleeding, Vitamin K foods reversed the effect. And too much Vitamin K led to clots. That is why I have to stay in the INR range of 2 to 3 when I get tested--above 3 could lead to bleeding and I have to take more Vitamin K; under 2 could lead to blood clots so I have to decrease my Vitamin  K. Thus, I get tested every other week.

The mechanism of Warfarin was not discovered until 1978, when John W. Suttie and colleagues, in an "Aha moment," proved that Warfarin alters Vitamin K by slowing down the enzyme epoxide reductase, known as VKOR, which is highly sensitive to Warfarin, the most commonly prescribed anticoagulant. 

There it is, folks, as easily as I could say it. My trademark is, Know a little bit about a lot of stuff and you'll get by fine.

A Christian Inspires a Jew to Believe in God Once Again

I wrote this short piece for the newsletter that’s coming. But I  decided to share it with all of you, my loyal readers worldwide. For a little more than 8 years after I had my stroke, I lost faith in God. Why, dear God, did you let that happen to me? I asked repeatedly, begging, imploring.

But then I heard Clem Suder talk about his faith in my online support group and especially his Live at 5 on Facebook, and something clicked as if God was speaking to him. Clem is a Christian and a veteran who has a brain injury; I am a Jew who has never served and had a stroke. But we share the brain injury and God. You are witnessing the outcome here in my writing this statement:

Fact: Having a stroke is not a good thing. I got mine from Protein S Deficiency. Others got theirs from too much fatty foods or too high blood pressure or smoking or diabetes or something else completely unknown to them. Whatever the reason, it turns your life around, and your family's life, too, because you're a different person now. Depressed? Frustrated? Low self esteem? I get it because I know as a stroke survivor, and depending on the severity, you may have many more reasons to give up. Or die.

But here's something, after 10 years, I learned about myself. As the years went on, I am more compassionate, wanting to donate to causes when I don't have much money left at all. I am more easy going now, letting things go with the flow, which is new to  me, having worked many jobs where the pressure was too much to bear. And the most important thing now in the after effects of the stroke (and trust me, there are after effects) is when I do good for other people, I don't expect anything in return. No quid pro quo, as the expression goes. 

So I am a better person now as I approach the end of the tunnel. And yes, for all the mistakes I made in the past--like cursing, hissy fits, and gossiping--I am turning my life around for the better. I hope when the Judgement Day comes, He'll see it that way.

And while I have your attention, please contribute, even a dollar makes a difference, to the campaign I started in GoFundMe.com for Clem as me, the editor. Clem produced a video book and now, he wants to take those same words and publish it in book form. He has seen Heaven, and Hell in both a metaphoric and real sense. You can search for Clem by typing “Clem veteran” on GoFundMe and you will see his image,  asking for support in publishing his book. Thanks for whatever you can do.

Can Hypnosis Improve Me as a Stroke Survivor to the Point Where I Could Abandon My Cane? Read What the Hypnotists Told ME!

I had this idea because I'm desperate to get better faster. I'm in the same holding pattern for almost a year. Sad to say, I've plateaued. But could I get better? No one will give me a definitive answer because no one has a crystal ball--my own current physical therapist least of all! Hypnosis, I thought, to make the muscles go beyond where they currently are, in order to make me walk again without the assistance of my 4-legged cane! 

I'm not going off topic, but this is something that needs to be said from the top. I'm from Philadelphia, home of the cheesesteak and soft pretzels. Other places I visited are known for other things, like New York is known for its pizza. Florida is known for its big bugs and DisneyWorld. Maine is known for its lobsters. But Southeast Portland, where I am now, is filled with all kinds of storefronts and buildings I just didn't see in other places, like a lot of, an inordinate amount of, Natural Remedies and Acupuncture run by naturopaths and Hypnosis run mostly by psychologists (or those purporting). Portland is the land of possibilities. Not guarantees, mind you, but a whole bunch of probable maybes.

I made an appointment with someone whose card reads: Whole Individual Counseling: Counseling the Array of Self Growth. Hoo, boy! (Another Philadelphia expression, at least I always say it). Anything goes in Portland. 

I'm going to paraphrase what he told me, scribbled down right after I left, and the words in brackets are what I thought to myself. Here's the paraphrased conversation from the counselor:

This is one thing that might [operative word here] help: I can give you a recording that you may listen to on a daily basis, and you can imagine your legs and arms moving with your eyes closed. [No talk of hypnosis yet]. Unlike the movies where a hypnotist gets somebody to do unlikely things, the thing that might work for you is listen to the recording several times a day. [No talk  of hypnosis still]. With your eyes closed, imagine moving your thumb. [I didn't, of course. My arm has been dead for 10 years]. He asked how long I went to physical therapy as the session was ending, and I said, Off and on for 10 years. [So the typical physical therapy was the fallback. And then the session was a minute from ending]. You might try a clinical psychologist. [I asked, but he didn't recommend one]. 

So I tried three "clinical psychologists" who advertised their sessions as such, and they all said, more or less, the same thing: Hypnosis can only control what you're able to do physically. [To say it another way, I can't do most shit]. Hypnosis can help with anger management, insomnia, phobias, and fears but not walking cane-less.

So with that hypnosis idea ended, I imagined ways to stay happy yet challenged. Aside from writing which, in itself, is challenging to the hilt, I love being alive and, come to think of it, life is a challenge, too. 

A Brain-Injured Guy, Who's Also a Veteran Named Clem, Needs a Volunteer to Transcribe

Clem Suder, presently 68 years old, was just an ordinary guy and a veteran, supporting his family and working hard as a regional operations manager. Fourteen years ago, he started to not feel so well in the middle of the night, and began to go downstairs to the kitchen where he stored all the medication. 

Suddenly, he toppled over and fell down a complete flight of stairs. His son found him 24 hours later. As a result of that fall, he got a traumatic brain injury (TBI), with severe memory issues, but you would never know. He looks fine on the outside, which goes to prove the old adage, Disability comes in many forms. 

By his own admission, Clem was, at first, fearful to talk about what he had witnessed. "People would think I'm crazy." 

Clem says, "This book, Playing with God, is my witness to what God has shown me in my body, mind and spirit. It is my witness to our Father, the Creator of all. In order to understand, see it through the spirit's eye and the heart's beats. It is for this reason the media has been ruining itself and yourself so you will not believe what you see with your own eyes. They are trying to convince you to not believe what you see."

That last part from the New Testament deserves an  explanation. As Clem said: "The city from heaven is what will be it is important because it shows that this is not the only room and that all of God's children will be reunited. It triggers the second resurrection because of the fear that many face. A thousand years earlier the temple that lies in the street for three days is the second witness, and He will rise even though the people rejoiced at his death thinking they have killed their accuser. It is upon his raising from the dead that the first resurrection is triggered because then he goes to his Father and is given the scroll and breaks the seventh seal. 

"In essence, it brings hell to earth for all those who seek to be apart and refuse to acknowledge God. It is important that people see for themselves. What was written so long ago will happen, as it says, and there are several descriptions of what people saw as the end of days. 

"Each has validity, but I only together will it be true, no one may know the time or the day, but you can see all of the things needed for it to occur. This is one of the primary reasons I have been a witness today. It will permanently remove the past and the fear which is what will allow for all of God's people to be together."

Before I met Clem, Daniel, the co-founder of the group Strokefocus, first began calling me five years ago because of my blog, The Tales of a Stroke Patient and More, and said that he was forming a group of stroke and other TBI survivors. I assured him I did want to join. That group included Clem, aside from a whole bunch of wonderful people, and I didn't know of his intentions to write a book until three years later.

It was a video book, on Facebook, where a steady stream of followers watched him deliver a total of eight chapters of Playing with God every Tuesday and Thursday until the eighth and final chapter. (He also runs Live at Five 3 days a week to talk about doing the right things, no matter what denomination you are). I call him the Prophet because of what he saw and did about it. 

On my Timeline from Facebook, the eight spoken chapters are there. Clem is a gentle, soft-spoken soul, and he speaks with such conviction that I restored my belief in God because of Clem which I lost when I had the stroke 10 years ago. 

But Clem is not done. He wants an actual "book" book with the same title, Playing with God. I offered to edit the book for which Clem was appreciative, but I am asking my readership around the world if someone will volunteer to put Clem's words on paper, i.e. transcribe what Clem has spoken and then send them to me in an email. The average length of each of the eight chapters is 45 minutes. You will be given name credit for transcribing aside from doing a wonderful deed to help Clem.  

As the editor, you can write to me--hcwriter@gmail.com--or if you have Facebook, you can write me a private message to show your interest. 

Thanks to you, whomever you may be, for assisting with this effort.